Noah's Progress

Noah is doing great! We are slowly weaning his O2 and hope to have it off before we go home. He's making huge progress with his physical Therapy. We had an appointment today and don't go again for 2 weeks but his Therapist said she wouldn't be surprised if he rolled over by then. And today we made MAJOR progress on eating. Last Thursday at his eating therapy we tried a new bottle. It's the type of bottle they use on infants with a cleft palate. It's just easier to suck and has a variable flow. But its been working good. He's been using it off and on all weekend but hasn't been able to take a full feed from it. Then I made the mistake of giving him some meds in his mouth (I really wanted the feeding tube gone) and that made him so mad his puked and wouldn't even let me put his paci in his mouth the rest of the night. So I've decided to work on getting all his feeds by mouth before trying the meds. Then today, he woke up from his nap and took his entire feed (all 80 cc's) by mouth!!! He had to burp a few times and needed a sugar shot several times, but he actually ate the whole thing and in only 20 minutes! I was so proud I had to call Allison and his OT Therapist and brag. What a good little boy! So we are definitely on our way to being tube free.

Also, our current GO HOME date is scheduled for October 25th. We'll go to clinic in the morning, be cleared by the afternoon if all is well and we will drive home the next day (the 26th). The idea of "home" has become such a figment of my imagination. I almost have to ask myself if it's really there. But I am SO excited...

One more thing.... I recently found out that my Aunt Ann is very sick. She had to have surgery and there were some serious complications and she can no longer talk and is paralyzed. I don't have many details, I just know she's in serious need of blessings. Please keep her in your prayers. She is such a wonderful sweet woman and her family loves her very much. And I would very much appreciate your prayers on her behalf.

Much Love,

~Crys