3 Times in One Week

We went to the hospital again today. Noah still isn't eating very well... actually he is hardly eating. He is also breathing very fast and is extra irritable. His sleep habits are all messed up too. He is napping much more but doesn't want to go to sleep at night. (that happens to me when I'm sick too)

Dr. Samson-Fang joked with us that he always seems to get sick on the weekend. She wasn't joking either. I can't believe for how well he is doing and how relatively healthy he is considering everything that we still end up at the hospital 3 times in one week.

Anyways, she isn't sure what his deal is. He's probably brewing something and we just have to wait until he gets sicker to find out. Which will probably be Saturday Night since thats the most inconvenient time.

He might have C.Diff again. He might have something up with his liver. He might have pnemonia. He might have something else completely. These were just the things that were on the top of the list. His ears surprisingly looked fine. There was still a little fluid behind one but it didn't look infected at all... and the weird thing??? Still no fevers. Dr. Everitt (his cardiologist) said he can still get infections even though he's immune suppressed but he never seems to get them, even with RSV and Lilly had a really high fever. Go figure.

Anyways, we'll wait out the weekend and hopefully he gets better not worse. But we have to go back next week regardless so we can check his level again since it was too low last week.