A Beautiful Place

Beckham's Mom, Kim, told me of another baby... soon to be born Mia... that was diagnosed with Critical Aortic Stenosis and a bad Mitral Valve. She too will need a Heart Transplant when she is born.



This is the first baby I have learned about that had Noah's same diagnosis. Until now, Beckham has been the only other baby with Heart defects similar to Noahs. Many of the precious Heart Babies I have met are HLHS.



Now, this doesn't really matter. But I guess because when I first found out about Noah's condition I felt SO ALONE. I had never heard of anyone who had been through this sort of thing (That is VERY different now) that I feel a greater connection to those who have the same diagnosis. It's almost like I have an instant bond with them because they know they same terms and the same procedures and the same circumstances... the world of HLHS can be very different. (although, my favorite poem was written by a mother of a HLHS baby so I guess it's not all that different.)



Anyways... I guess what my ramblings are trying to say is that I just feel extra sensitive when I hear about a baby who has the same condition as Noah. It touches an extra tender spot in my heart because I know. I feel it. I live it.



And while I know there really isn't anything I can say that will make their journey any easier. It's a journey that only the Lord can carry you through, I hope (and pray and pray and pray) that by seeing Noah now (MY JOY) they will know that things can and will be better. That it's a rough road that leads to a beautiful place.



My prayers are with you baby Mia and family.