Love the pics! So precious! Could he be any cuter? I can't wait to meet all of you (finally).
I talked to Beckham's doctor about his "stiff heart" (you peaked my curiosity about it) and he said that Beck still suffers some what from "left ventricle hypertrophy," but it has been getting better with each ECHO he sees. The team thinks that it was caused by the heart being out of the body and the steroids he was on at the beginning. His doctor does not seem worried about it. Has Noah's doctor noticed if his heart stiffness has been getting any better over time?
Anyway, sorry to write you a book. I hope it helps some and I hope that you all get better soon. We are sick here also. Beck has had a fever for the last couple of days. Yuck. Hopefully it will clear up soon and won't interfere with our vacation plans. Have fun in Cali!
To the world you may be one person. But to one person you may be the world - Author Unknown
"When you come to the edge of all the light you know and are about to step into the darkness of the unknown, faith is knowing that one of two things will happen. There will be solid ground to stand on or you will be taught to fly." -Author Unknown
The Day I Became A Heart Mother
One day my world came crashing down, I'll never be the same. They told me that my baby was sick. I thought, "Am I to blame"? I don't think I can handle this. I am really not that strong. It seemed my heart was breaking. I have loved him for so long. I will not give up on this child. I will listen to your advice. I will give my son any chance. No matter what the price. I will learn all that I need To help my baby thrive. I'll even use that feeding tube. My child must survive! Will he need a lot of therapy? Will he gain the needed weight? Please God, help me do this. As I accept our fate. When the monitors beep at night, it serves as my reminder. How many parents would love that sound. Tomorrow I will be kinder. As another Angel earns his wings, I run to my baby's bed. I watch him sleep for quite a while. I bend down and kiss his head. I cry for the parents whose hearts have been broken. I look to You wondering why? Oh Lord, I just can't know your ways.... no matter how I try. And yet, I trust you hold his life, and guide us through each day. My mind says savor each moment he's here, but my heart begs, "PLEASE let him stay"! From pacing the surgical waiting room, to sitting by his bed. From wishing for a good nights sleep, to learning every med. From wondering, "Will he be alright?", to watching him reach out his hands. With every smile my heart just melts, despite life's harsh demands. For all who see that faded line. I look to them and smile. You see my child is loved so much. I would face ANY trial. That scar I trace with my finger (It's the door to his beautiful heart). God must have known how much I'd love him (Just as He loved him from the start). A heart mom is always a heart mom. Now wise beyond her years. For those who have angels in heaven, Our hearts share in all of your tears. Every day I will try and remember, I was chosen for him (and no other). I will always embrace that beautiful day....... When I became a "Heart Mother".
~Stephanie Husted Mommy to Braeden HLHS post Fontan Carepage name: babyhusted
Love the pics! So precious! Could he be any cuter? I can't wait to meet all of you (finally).
ReplyDeleteI talked to Beckham's doctor about his "stiff heart" (you peaked my curiosity about it) and he said that Beck still suffers some what from "left ventricle hypertrophy," but it has been getting better with each ECHO he sees. The team thinks that it was caused by the heart being out of the body and the steroids he was on at the beginning. His doctor does not seem worried about it. Has Noah's doctor noticed if his heart stiffness has been getting any better over time?
Anyway, sorry to write you a book. I hope it helps some and I hope that you all get better soon. We are sick here also. Beck has had a fever for the last couple of days. Yuck. Hopefully it will clear up soon and won't interfere with our vacation plans. Have fun in Cali!
Both pics are adorable. The second one is priceless and absolutely precious!
ReplyDeleteWow I wonder how you got such amazing pictures!! He was a DREAM and I was so glad i got to snap a few "pictures!
ReplyDeleteOh my! I love these photos...his hair is so stinkin' cute! lol!!
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