I thought it was time to post some pictures. These are from over the past month or so.
ALISON!! WE LOVE YOU!!
(This is Noah's Transplant Coordinator in Denver)
We sure missed you!
Daddy and Noah right before his Heart Cath at The Children's Hospital in Denver.
Mommy and Noah.
(He's such a cutie!)
Oh, BIG kisses!
He loves the camera.
Mommy and her two precious babies.
(Lilly gives Noah a hug before his Heart Cath)
Nannie gave Noah a bath when we came over for Sunday dinner.
Just chillin'!
Know who that is with Noah? Yep, that's Beckham!!
"Hey, you have a new heart too!"
Just as Kim and I suspected, they were instant friends.
We were so lucky they were in town and came to Lilly's Birthday Party. We sure love them.
Aunt Maegan and Noah just playing around.
I'm going to get you dad.
Man... what a stud!
Beckham is a stud too!!
Tuesday, July 22, 2008
PICTURES!!
With Much Love, Crystal at 9:37 PM 2 Shared the Love
Noah's Newest Trick
I went into Noah's room to help settle him down since he wasn't napping. This is what I found.... (he was SO proud of himself!)
With Much Love, Crystal at 4:39 PM 1 Shared the Love
Friday, July 18, 2008
Making Progress
My insurance company is giving me a major headache right now.
They told me that since we do Noah's OT and PT (Occupational and Physical Therapy) through Home Health, that I wouldn't have a copay.
Now they are telling me I do... including having to back pay all the past visit.
$30 a visit x 2 times a week x every week since last November = sickness in the pit of my stomach.
So while I try and get things worked out, I had to cancel his current appointments. I'm going to try and get him signed up for Early Intervention but even that costs us money.
In the mean time, we have all been working very diligently with him and he is making good progress. It seems he has reached a developmental breakthrough recently. He's learning to pull himself up and scoot his knees under him. He seems SO close to really crawling on all fours and not just dragging his belly. He's learning to communicate much better. He doesn't talk really well, but I've learned to decipher Dada, Babaa, Mama, Ball, and signing All Done. Even the look in his eyes seems a bit more aware.
It's so fun and wonderful to see things "click" and the light turn on. He gets SO excited. It just thrills me.
Insurance, on the other hand, Not so much.
With Much Love, Crystal at 12:54 AM 5 Shared the Love
Monday, July 14, 2008
Sunday, July 13, 2008
Monday, July 7, 2008
To Our Donor Family
One year ago today you gave me the greatest gift someone could ever have given me. You gave my baby life. You gave him the heart that I couldn't . You gave me the chance to watch my son grow and experience life.
I have been unable to find any words that adequately express my gratitude. Even thank you just isn't enough for what you have done for me, for my family, for Noah.
My heart breaks when I think of the price that has been paid, the loss you have endured. I carry that pain with me every day. I am humbled to know that in the midst of your heartbreak you could still find the strength to give the gift of life to a complete stranger.
Since I haven't found the words yet, please know and try to understand that the depth of my gratitude is overwhelming. Thank you for saving my baby and giving him the heart I could not. Thank you, Thank you.
May God bless you and yours everyday for the gift you have given us. May you find comfort in knowing it will never be taken for granted.
With Much Love, Crystal at 12:55 AM 11 Shared the Love