The other day I was feeling a weight on my shoulders. You might know the one. I'm sure most Heart Mommies, Transplant Mommies and Daddy's too have felt it at one point along the road. The weight of knowing that it's never over. That it's not something that can be healed with an antibiotic or that is cured. It's a life time journey.
I'm fine with this.
It was the reminder of how short a time it might be that bothered me.
Hearing of Brandi's passing and of Kenzie's rejection really upset me. Not only as I grieve and pray for their families but also as I worry about what the futur may hold for Noah.
The fact that I almost lost him on several occasions never has a difficult time reminding me of that pain.
And then there was a light in the dark tunnel I was clouding myself in.
I saw a blog post on my (extended) cousin's blog. The same cousin I turned to when I learned of Noah's need. Because she had been there once. Many years earlier she was diagnosed with Cardiomyopothy and received a Heart Transplant.
Her post?
"Today makes 20 Years Post Transplant."
My fog lifted. My joy was not only for my cousin. It was also for Noah. (And Kenzie). Yes, there are some journies that are cut short. But then there are some whose journy is just beginning. Even with 20 years...
I don't know when Heavenly Father will call Noah home. But I know that he WILL full fill his mission in this life before he goes. He was given that promise.
So now, I just have to have faith. Faith that God's will will be done and then I have to pray... That it won't be done for 80 more years.
And hey, 20 years is a good place to start.
*Happy 20 years post transplant Kalli! That's a true testament to your strength, your determination, and your love of life. All things I hope to instil in Noah. I love that both Noah and Beckham have you to look up to. Because I know how truely we do need you!.**
Tuesday, February 10, 2009
A Different Perspective
With Much Love, Crystal at 1:34 AM
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You made me cry.. which is bad when I'm at work!
ReplyDeleteI too find myself often wondering what the future holds for Kaidence. I try not too think too much about it, but at times find it very overwhelming. Thank you for this post. It has given me more hope.
ReplyDeleteI too find myself often wondering what the future holds for Kaidence. I try not too think too much about it, but at times find it very overwhelming. Thank you for this post. It has given me more hope.
ReplyDeleteI don't know what we'd do without Kally. She has been such a strength to us and shows how you can live a LONG and normal life as a heart transplant recipient. Just like your title of your post says, Kally always leaves me with a "new perspective," and helps me not feel so overwhelmed. We just have to endure these first couple of hard years first!
ReplyDeleteWow, 20 years is just great!
ReplyDeleteDay by day.
I just stumbled on a blog where the baby just got a heart transplant yesterday and is struggling. I thought if they weren't on your radar already you might be able to offer some encouragement.
ReplyDeletehttp://thegledhillfamily.blogspot.com/
Best Wishes,
Wendi
Mom to Luke - TGA, VSD
http://babyluke.wordpress.com