Sick and Sick of Winter

Noah has been sick since January. He just can't seem to shake it. It flares up, gets a bit better, then flares up again. We finally did one round of antibiotics last month and it helped enough to turn his snot from green to clear again but his poor nose is like a broken faucet. It runs and runs and runs.

What's weird, is that it seems to get worse after his synagis shots each month. This past week he got his shot on Monday. Tuesday morning he was sicker. By Wednesday morning, he was having such a hard time breathing that I hooked him up to his nebulizer and the pulse ox. His Oxygen saturation was about 89 and that's with very fast labored breathing. So I called the pediatricians office. Dr. Samson-Fang wasn't available but the nurse, Diane, said it was best to come in. So up to the hospital we went. Since we did the breathing treatment before we went, by the time we got there he was back up to 95. We saw a Doctor we have never seen before but she said he didn't sound like he had pnemonia and his ears were clean. So she sent us home.

It seemed like a wasted trip because he still sounds so awful when he struggles to breath that I have a hard time believing he doesn't at least have bronchitis. But, I also have a hard time trusting just any Doctor when they aren't familiar with Noah's status as a medical enigma.

Either way, we are doing his breathing treatments several times a day to help him breath. I also had to put him back on the oral Gentamyacin IV since his super stinky diarreah came back too.

Even though this has been a rough winter full of hard to kick germies, we really are very lucky and blessed. The germies we've had have been manageable from home. Our sweet Heart Cousin Beckham has been in and out of the hospital with low platelet counts. It's so bad, that he is now back in the hospital indefinately until they can get it back to a normal level. It's just too dangerous for him to be away from the hospital since he bleeds so easily and it doesn't want to clot. The poor little guy is covered in bruises. It breaks my heart!! Please keep him and his family in your thoughts and prayers.